When I read about the term "citizen science", it is usually associated with collaborative research in most cases initiated by a "Normal" (i.e., professional) researcher - basically crowd sourced research.
I represent a different "category" and am not sure where I fit in to the citizen science movement or if I do at all. The short version is that I was diagnosed with a rare, untreatable autoimmune condition in 1990 (systemic scleroderma), started researching the disease and came up with a new disease model and treatment approach that worked, became a disease expert and educator and most recently have formed a research team consisting of major researchers to explore the disease model I proposed in 1993. I have presented posters at two medical conferences and have one paper recently accepted for publication in a research journal. The longer version of the story can be read here: http://sclerodermainfo.org/pdf/Ed.pdf.
So in a sense, I am a reverse of the normal "citizen science" model. I am a non-professional leading a research effort that includes a team of researchers who are working with me on this project. My situation is certainly rare but is not unique ( http://phenomena.nationalgeographic.com/2014/08/19/how-an-extreme-athlete-uncovered-her-own-genetic-flaw/).
So, what am I and how do I fit in? I have started to use the term "citizen researcher" when I am inevitably asked the question "Who exactly are you and who are you affiliated with?".