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Rare Disease Day at NIH 2018

Category: General


Rare diseases affect an estimated 25 million people in the United States. On March 1, 2018, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations.


Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will take place:


March 1, 2018, 8:30 a.m. to 4:00 p.m.

Masur Auditorium, NIH Clinical Center (Bldg. 10)

10 Center Drive, NIH Campus

Bethesda, MD 20892


Register today, view the agenda and learn more via

The event will feature interactive panel discussions, posters, exhibits, and tours of the NIH Clinical Center. Admission is free and open to the public. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. Participants can share their thoughts, photos and experiences during the day via social media using the hashtag #RDDNIH. The event also will be webcast at

Prior to the event, on Feb. 23, 2018, NIH will host a Twitter chat on rare diseases from 1:00 to 2:00 p.m. ET. The chat will feature NIH Director Francis S. Collins, M.D., Ph.D., and NCATS Director Christopher P. Austin, M.D., as well as representatives from the rare diseases advocacy community. Join in the conversation via #NIHChat.

Individuals with disabilities who need sign language interpreters and/or reasonable accommodations to participate in this event should contact Ashley Cornett at or 301-572-0287, and/or the Federal Relay number at 1-800-877-8339. Requests should be made at least 5 days in advance of the event.

When: Thursday 01 March, 2018, 8:30 am - 4:00 pm EST
Where: NIH, Bethesda, MD
  2. rare disease
  3. rare disease day
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